Proteção integral à infância com microcefalia: uma análise sociojurídica na cidade de Campina Grande - PB

Abstract

The present work aims to present the right to health of children with microcephaly in the city of Campina Grande, a syndrome that arises from the Zika virus epidemic that occurred in the Brazilian scenario in the years 2015 and 2016. The purpose of this is to explore the pioneer organisms of the as a reference in Brazil, which values the protection of these children, as well as to know the reality of some of them and their daily life. The objective of this research is to ensure the effective protection of the right to health of children with congenital malformation. Likewise, it was intended to understand public policies in the area of health, as well as to protect the rights of children with microcephaly in order to ensure compliance with the law, applying it to the social body, as well as guiding the persons responsible for these children of the rights guaranteed to them in order to verify the effectiveness of social and economic policies aimed at them. The deductive method was used as method of investigation, whose research technique used is the bibliographical one, a doctrinal, legal and jurisprudential analysis was carried out and in a complementary way the field research. Interviews were carried out with the mothers of some children with microcephaly and the protection organisms were analyzed. Although there are exclusive protection organizations to treat this deficiency, as well as a specific law that guarantees some of these rights, we can observe the inefficacy of public power in the absence of allocation of funds for the health care of people with this syndrome. A clear violation of the right to health provided for in the Major Law and in the Statute of the Child and Adolescent can be seen, among several factors it is worth noting the lack of medications, orthoses, prostheses, non-granting of wheelchairs, the precarious treatment. Another caveat that concerns the lack of information of the relatives of these children about their rights.