Além do CAPS: entraves e possibilidades no cuidado à criança/adolescente com deficiência intelectual.

Abstract

Intellectual disability is a chronic health condition and of great importance to public health, as it has serious repercussions for the lives of children and their caregivers. This research aimed to: know how care is developed for children and / or adolescents outside of CAPSi. This is a field research of qualitative approach with descriptive-exploratory typology, conducted from May to September 2016, with eight caregivers of children and adolescents with intellectual disabilities in CAPSi, located in Campina Grande -PB. The material collected through a semi-structured interview was interpreted based on the content analysis technique. From the creation of the thematic category: “Care for Children and Adolescents with Intellectual Disabilities”, it was observed that the socioeconomic factors of the caregivers directly influence the care as well as their understanding of the diagnosis of the disease. In addition to CAPSi, child care is performed in an educational and family context and the difficulties reported by the caregivers were: the limitations of the disease itself, the burden of care and prejudice. It is believed that given the barriers and possibilities of care presented, health professionals who accompany the child and family could develop strategies that would provide greater support to the main caregivers, especially seeking a dialogical relationship with the family to try to minimize the difficulties.