Os corpos adoecidos: experiências dos portadores da doença dos “Lábios Azuis”.

Abstract

The present dissertation reflects on the way in which the patients of the "Blue Lips" disease deal with the same one from the diagnosis, in the daily coexistence until the limitations that present with the pathology. To do so, I analyze the documentary corpus consisting of numerous images, whose writing support is cyberspace, as well as interviews that have been transcribed by me, in order to reach the objectives of the dissertation project. In order for this work to become possible, I took advantage of Jorge Larossa concept of experience , which is paramount in giving a vogue to the research in vogue, because it is the discursive experience of the patients who provide the raw material for this research. Regarding the analysis of the diseased body, in the context of the hospitals, I used Michel Foucault that brings us the understanding of the birth of the clinic, the medical discipline on the body and the medical discourse to understand the illness. The link of the research is made with a writing full of sensitivity and life stories that narrate the coexistence with this pathology.