Ser mãe de um individuo com paralisia cerebral: um olhar voltado para a figura da mulher na dinâmica do cuidado.

Abstract

Having children in a organized society by the point of view that, to the woman concern to criate and educate them, preferably “normal” and health children, so having children with diseases that cause permanent physical inabilities, like Cerebral Palsie(CP), can bring to this mother-women a great responsabilty about familiy conditions. In this aspect, being a deficiency person’s mother can make her live in a world of renunciation, fightings and personal’s and social’s life modification, that also influences in her phisical and mental health. This research’s objective is to know cerebral palsies’ mother’s experiences, trying to comprehend how their chidren influences their lifes, with this guiding question: “How is like to be CP’s mother?”. It has exploratory-descriptive character, with qualitative approach, desenvolved with 10 mother-womens of CP’s childs filiated the Association of Parents and Friends of Exceptional Children (APAE) or the Rehabilitation Center of Campina Grande (CRCG), which has been treating in this institutions at Campina Grande city, Paraíba. To collect data, interviews were conducted using a semi-structured, in the period between 16 August and 9 September 2016. The analysis was performed based on the content of Bardin (2012), in the form of thematic analysis. To introduce the dynamics of beeing a “special mother” revealed delays and advances at the factors’ presence which colaborate for these women’s welfare. Although they become to realize inadequates causes and practices, still prevailed ignorance about CP’s meaning. Talking about health’s professionals, the highlight is the humanization’s precariouness, responsabilization and commitment with woman’s health and maternity. About treatment, delays involved precariouness assistance to CP’s childs at distant places, and lack of instruments who auxiliate routine. The advances ocurrred, in the most of it, at the child’s continuous and multidisciplinary treatment, at the praticity to obtain wheel chairs, and the school’s attendance. It also detected the child’s condition’s acceptance, that begins to be predominant at parents relationship, however, the mother is the one who cares most. Such advances may be propelled from the improvement at assitance to CP’s at small cities, the institution of educational practices, the creation of support groups at rehab institutions, and government providence equipments and alternative ways to transport. Nursing, in special, has to investigate and detect problems at childrens’ developtment, and, as well, be a link to promote balance between children’s health, woman-mother welfare and interdisciplinarity with other health professionals. Research has respected ethicals and legals rules that guides studies involving human beings and only started after approval by the Research Ethics Committee (CEP) of the University Hospital Alcides Carneiro (HUAC).