Um toque de amor à morte: construção e validação de cartilha educativa sobre a prestação de cuidados das doulas da morte.

Abstract

A death doula is someone who knows and understands the physiology of the process of end- of-life and death, who respects and ensures the basic needs of the person at this stage of life

and, above all, respects the options of the person who is dying. and his family and friends, supporting informed and conscious decisions. In view of this, the objective of this study is to construct and validate an educational booklet for patients and health professionals on the provision of care by death doulas in the process of human finitude. This is a methodological research, of technological development, with a qualitative approach, consisting of three steps: 1) bibliographic review; 2) construction of the booklet and 3) validation of the booklet content. The scope review showed that death doulas provide their services – as a supporter, companion, helper and advocate for the patient – in the pre-death and post-death phases. From the scope review, the 'doll' of the booklet was built with the help of the Canva ® Program, which has 41 screens and four chapters that address the entire historical, care and educational context of death doulas. Content validation resulted in a total CVI of 0.81 in the first Delphi round and a total CVI of 0.98 in the second round, proving to be scientifically valid. The pilot pre-test made it possible to improve the layout of the booklet with regard to the program's graphic elements and details of the photographic images. It is believed that the booklet has scientific relevance for the area of education and health, since it can be used by health professionals throughout the health care network, in order to inform them about the existence, importance and role of the death doula in the various care scenarios, especially in the context of palliative care.